What Not To Say To Someone With An Invisible Physical Disability | The Odyssey Online
Start writing a post
Health and Wellness

What Not To Say To Someone With An Invisible Physical Disability

The struggle is real.

1055
What Not To Say To Someone With An Invisible Physical Disability
Google

Those with invisible physical disabilities are widely thought of as lazy, moody, or incompetent, due to not having any visible sign of illness, as in a cane, walker, etc. However, we know that this is not the case. It is believed that at least 10% of the United States population has some sort of invisible disability, however this spectrum covers both neurological disabilities and physical disabilities. For the sake of this article, I will mainly focus on those of us who have invisible physical challenges, like myself.

In my own situation, I have a very rare invisible disability called Myotonia Congenita. There are two main types to this disease: Thompsons and Beckers. My symptoms include muscle tension and stiffness in most voluntary muscles, slower reflexes, rapid and abnormal muscle growth, and muscle aches. For example, when I stand up from sitting for varying periods of time, my muscles contract and don't relax immediately, which means I can't begin walking until my muscles have relaxed. This can cause me to do multiple things: lose my balance and fall back into my seat, face plant into the floor, or pause and stand in one spot until I feel like I can move my legs again. Because of this, I have a D Pass (disability parking pass) for school and also a regular disability window hanger for my car.

Because I look like a very healthy person who works out constantly (and I don't), I have been given angry looks when I park in a disabled spot. I have had to explain to people that, when they push me, I can't catch myself like an average person. I have had grown adults get angry with me because I have to walk slower. I've even had people grunting, groaning, and making comments behind me on stairs because I walk incredibly slow up them and I can't do anything about it. I know others with my condition carry around a cane despite not needing it, only because if there's no visible sign of ailment on our bodies and they have had enough encounters with angry people who don't understand our disease is invisible.

Here are a few things I really wish people would stop staying to those of us with invisible physical disabilities.

1. "But you don't look disabled."

I mean, that's the point of having an invisible disability. Unless I point it out to you, it's not obvious.

Instead maybe say, "Can you explain your disability more?" or "What sorts of symptoms/problems do you have?" Asking more questions leads to a better discussion.

2. "I don't even think of you having a disability."

This is part of the problem. Since our disabilities are not incredibly noticeable, it's easy to overlook them. Although this one does irk me, it's slightly more tolerable, since I do understand that you probably don't notice that I purposefully pause to look at my phone or fix my clothing when I stand up because, if I don't, I'll collapse. Or when you take off at a run, that I'm falling behind because my body won't let me spontaneously run at any given moment. Use this sentence with caution.

3. "How did that happen?"


Most invisible disabilities have been cause and effect. In my case, I was born with Myotonia Congenita ("congenital" means "from birth"), which was passed to me by my father who has one of the smallest cases of MC that I know of.

Instead of flat out asking what the cause and effect is, ask if there was anything that caused it by saying, "Was there something that happened to you to cause your disability?"

4. "Have you tried medication or surgery?"

I've heard this many times. Please do not say this to anyone because maybe we have tried medication and it hasn't helped or maybe we don't want to or maybe there is no medication to help us.

Instead say, "Are there any medications or surgeries that can help you?"

5. "But you're so young!"

Nope. Don't even start with this one.

6. (For those who can't relax their muscles) "Just relax."

I broke my leg as a kid and the only doctor on call was this horrible man who kept getting angry at me because I couldn't relax my leg enough for him when he was putting my cast on. No, I can't just relax. That's not how it works.

Instead ask, "Is there any way you can try to relax a little more?"

7. "You just wan't attention," or "You're just imagining things."

Just get out now.

8. "Are you always this lazy?"

For some of us, physical activity of any sort can wear us out and put us on the couch for a day or two, sometimes more. It's not laziness, it's our body's exhaustion. Sadly, though, there are a few who do use their disability as a way to just be lazy. However, I still would never say this to anyone because you don't know how they are feeling that day.

Instead ask, "Are you feeling OK today?" or "Is your body OK to do (blank) today?"

9. "Why do you need a handicap sticker?" or "You move fine, so you shouldn't have a handicap sticker. You're cheating." (This is said AFTER you have told them your disability.)

I'm pretty sure my doctor wouldn't have given me the write-up to have one if I didn't need it in some way.

All in all, if you don't understand the person's disability, just ask them to explain more about it.


Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
Featured

15 Mind-Bending Riddles

Hopefully they will make you laugh.

189806
 Ilistrated image of the planet and images of questions
StableDiffusion

I've been super busy lately with school work, studying, etc. Besides the fact that I do nothing but AP chemistry and AP economics, I constantly think of stupid questions that are almost impossible to answer. So, maybe you could answer them for me, and if not then we can both wonder what the answers to these 15 questions could be.

Keep Reading...Show less
Entertainment

Most Epic Aurora Borealis Photos: October 2024

As if May wasn't enough, a truly spectacular Northern Lights show lit up the sky on Oct. 10, 2024

14653
stunning aurora borealis display over a forest of trees and lake
StableDiffusion

From sea to shining sea, the United States was uniquely positioned for an incredible Aurora Borealis display on Thursday, Oct. 10, 2024, going into Friday, Oct. 11.

It was the second time this year after an historic geomagnetic storm in May 2024. Those Northern Lights were visible in Europe and North America, just like this latest rendition.

Keep Reading...Show less
 silhouette of a woman on the beach at sunrise
StableDiffusion

Content warning: This article contains descriptions of suicide/suicidal thoughts.

When you are feeling down, please know that there are many reasons to keep living.

Keep Reading...Show less
Relationships

Power of Love Letters

I don't think I say it enough...

457643
Illistrated image of a letter with 2 red hearts
StableDiffusion

To My Loving Boyfriend,

  • Thank you for all that you do for me
  • Thank you for working through disagreements with me
  • Thank you for always supporting me
  • I appreciate you more than words can express
  • You have helped me grow and become a better person
  • I can't wait to see where life takes us next
  • I promise to cherish every moment with you
  • Thank you for being my best friend and confidante
  • I love you and everything you do

To start off, here's something I don't say nearly enough: thank you. Thank you, thank you, thank you from the bottom of my heart. You do so much for me that I can't even put into words how much I appreciate everything you do - and have done - for me over the course of our relationship so far. While every couple has their fair share of tiffs and disagreements, thank you for getting through all of them with me and making us a better couple at the other end. With any argument, we don't just throw in the towel and say we're done, but we work towards a solution that puts us in a greater place each day. Thank you for always working with me and never giving up on us.

Keep Reading...Show less
Lifestyle

11 Signs You Grew Up In Hauppauge, NY

Because no one ever really leaves.

26516
Map of Hauppauge, New York
Google

Ah, yes, good old Hauppauge. We are that town in the dead center of Long Island that barely anyone knows how to pronounce unless they're from the town itself or live in a nearby area. Hauppauge is home to people of all kinds. We always have new families joining the community but honestly, the majority of the town is filled with people who never leave (high school alumni) and elders who have raised their kids here. Around the town, there are some just some landmarks and places that only the people of Hauppauge will ever understand the importance or even the annoyance of.

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments