What It's Like To Live With Someone Who Has Lupus
Start writing a post
Health and Wellness

What It's Like To Live With Someone Who Has Lupus

58
What It's Like To Live With Someone Who Has Lupus
Frank Huscha

Lupus is an autoimmune disease that attacks muscles and nerves.

Lupus was something I knew all too well because my mom was a victim of it. She was diagnosed with Lupus the summer before my Freshman year of high school. After finding out, she was distraught. None of us knew what to expect. The list of side effects seemed to be endless. The only thing we knew for sure was that this was an incurable disease.

A couple of months after the diagnosis, my mom began to feel a weird feeling in her left leg, but she thought it was nothing. Another month went by, she stated that the feeling was getting worse. I told her to get it checked out. She went for a Neurologist consult to figure out what was going on. Unfortunately, the doctor said that there was nothing that could be done to reverse the feeling. Another month went by, her leg was only getting worse. Her walking became more limited. The flare-ups happened more and more often. Before I knew it, I was carrying my mother around. Shortly after this, she became wheelchair bound. I knew that this was not what she wanted.

My mom did everything to continue with her life as normally as possible. Even in her non-walking days, she still managed to come out and watch me play baseball. People constantly made fun of her disability, it would get me livid every time. I don’t know how people could be so ignorant.

Unfortunately, three years ago, my mom had lost her battle with Lupus. Even after she passed away, people were still ignorant. I mentioned that she died of Lupus. Many people didn't believe me. YOU CAN DIE FROM LUPUS! Life with someone who suffered from Lupus was not easy. I made a lot of sacrifices to ensure my mom's final months would be as comfortable for her as possible.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
the beatles
Wikipedia Commons

For as long as I can remember, I have been listening to The Beatles. Every year, my mom would appropriately blast “Birthday” on anyone’s birthday. I knew all of the words to “Back In The U.S.S.R” by the time I was 5 (Even though I had no idea what or where the U.S.S.R was). I grew up with John, Paul, George, and Ringo instead Justin, JC, Joey, Chris and Lance (I had to google N*SYNC to remember their names). The highlight of my short life was Paul McCartney in concert twice. I’m not someone to “fangirl” but those days I fangirled hard. The music of The Beatles has gotten me through everything. Their songs have brought me more joy, peace, and comfort. I can listen to them in any situation and find what I need. Here are the best lyrics from The Beatles for every and any occasion.

Keep Reading...Show less
Being Invisible The Best Super Power

The best superpower ever? Being invisible of course. Imagine just being able to go from seen to unseen on a dime. Who wouldn't want to have the opportunity to be invisible? Superman and Batman have nothing on being invisible with their superhero abilities. Here are some things that you could do while being invisible, because being invisible can benefit your social life too.

Keep Reading...Show less
Featured

19 Lessons I'll Never Forget from Growing Up In a Small Town

There have been many lessons learned.

71052
houses under green sky
Photo by Alev Takil on Unsplash

Small towns certainly have their pros and cons. Many people who grow up in small towns find themselves counting the days until they get to escape their roots and plant new ones in bigger, "better" places. And that's fine. I'd be lying if I said I hadn't thought those same thoughts before too. We all have, but they say it's important to remember where you came from. When I think about where I come from, I can't help having an overwhelming feeling of gratitude for my roots. Being from a small town has taught me so many important lessons that I will carry with me for the rest of my life.

Keep Reading...Show less
​a woman sitting at a table having a coffee
nappy.co

I can't say "thank you" enough to express how grateful I am for you coming into my life. You have made such a huge impact on my life. I would not be the person I am today without you and I know that you will keep inspiring me to become an even better version of myself.

Keep Reading...Show less
Student Life

Waitlisted for a College Class? Here's What to Do!

Dealing with the inevitable realities of college life.

132620
college students waiting in a long line in the hallway
StableDiffusion

Course registration at college can be a big hassle and is almost never talked about. Classes you want to take fill up before you get a chance to register. You might change your mind about a class you want to take and must struggle to find another class to fit in the same time period. You also have to make sure no classes clash by time. Like I said, it's a big hassle.

This semester, I was waitlisted for two classes. Most people in this situation, especially first years, freak out because they don't know what to do. Here is what you should do when this happens.

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments