I love being an advocate for Tourette Syndrome. I love being able to share my story and inspire people to not let their challenges get in the way of their dreams.
I always say that I am more than my disorder. That it doesn't define me, and while that is true having a neurological disorder is really hard. I wouldn't wish it on my worst enemy.
I feel the urge to move throughout my body. I hear the thoughts begin in my mind "just let it out, it will feel better." "Do it again, that wasn't right." My body is something I should control, it's something I shouldn't be afraid of. But, my power to control is lost and I am forced to accept my battle. I move in ways I don't want to, my eyes blink, my feet kick, my head flicks, my stomach tightens and my breath shortens. The tics feel complete, at least for now. The exhaustion sets in as the day ends, but that doesn't stop my body from moving, and my mind going 1,000 miles a minute, and I've lost all control. Sometimes the day ends in tears. I lie on the couch, close my eyes, take a deep breath, and pray for a better day tomorrow. Not everyday is like this, most days are really great, without any movement or stuttering but my own, and I feel powerful and strong. Something tells that I'm stronger. I am stronger than I think I am, and that I have a purpose. I have a purpose, even if it's not clear yet, I know it will be someday. My disorder is apart of me, but I am so much more than that. And oddly enough, I wouldn't change any part of it.