I Am A Nursing Major And I Have Neurofibromatosis | The Odyssey Online
Start writing a post
Health and Wellness

I Am A Nursing Major And I Have Neurofibromatosis

Don't forget that every person you meet could be fighting a battle you'd never know about.

37
I Am A Nursing Major And I Have Neurofibromatosis
Jesse Orrico

Neurofibromatosis is a genetic, neurological condition that affects approximately one out of every 3,000 people worldwide. NF causes tumors to grow throughout the body, which can lead to life-altering (as well as life-ending) complications. Sometimes you can look at someone and tell they have NF, but most times, you would have no idea.

There is no cure.

At 18 months old, my mother received news that her only child and daughter had Neurofibromatosis. My family had never heard of this condition, and we never knew the blessings it would end up bringing to our family. During this time, my mother also received news that I had tumors on each of my optic nerves, which could eventually cause me to lose my sight. She also was prepared for the seizures in years to come. Oh yeah, she was also told that I had a limb length discrepancy -- that basically one of my legs was four inches longer than the other.

So what did my mom do? She researched as much as possible. She knew the coming years would be filled with doctor visits and trials, but she stuck it out. During her research, she found that many children with NF did not live past puberty due to the fact that the tumors they develop cause many complications for them. And if an NF patient didn't die, they often didn't have the opportunity to lead fully functioning lives as adults.

I, however, beat these odds. Yes, I have had six surgeries, all performed free of charge thanks to Shriner's Hospital for Children. Yes, I had seizures, and yes, I still have my tumors, but you'd never know this by looking at my life. Nobody else in my family has NF. But I know that at the end of the day, I was given this disease because I was strong enough to handle it.

Nursing is both a rewarding and difficult job. Nurses have to be physically and mentally prepared to know that they hold someone's life in their hands. They are also possibly faced with fighting for a patient's life. Well, I have been fighting for my life since the moment I was born. Because of this fact, as both a patient and a future caregiver, I know that I have an "advantage" when it comes to tending to my patients down the road. I know that every patient I get the opportunity to nurture is a blessing as well as an opportunity. Each patient has their own story. And I have been on both sides of that bed. I know the power of a simple touch, smile or listening ear. I know that everything a caregiver does has the potential to impact a patient forever.

NF is a powerful disease. Each of us is affected differently by it. This disease is not known very well, but its impact is anything but small.

I know there is something grand out there for me. If I was given a disease that affects one in 3,000 people worldwide and I am still around to tell my story when many are not, that means I am not finished yet. I was given the opportunity to have NF and be a nursing major because I know that I need to impact lives in some way.

NF goes to show us there is always more than what meets the eye. You'd never know that by looking at me, a college sophomore getting ready to start her nursing clinicals, that I have a mutation on one of my chromosomes that could potentially allow for rapid tumor growth at any point in my life. But I do.

We all have a story. We all have something lurking beneath the surface. As we grow older, we tend to forget this tiny fact. Don't forget that every person you meet could be fighting a battle you'd never know about.

I did not choose NF. NF chose me. I did not choose nursing. Nursing chose me. And I cannot wait to see why.

Most of what is known about NF is has been found out through research done by the Children's Tumor Foundation. Visit their website to further educate yourself and others.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
Lifestyle

Pros And Cons Of Having A Birthday Near The Holidays

The truth of what it is like having a birthday around the holiday season.

2018
Christmas decoration
Flickr

It's the most wonderful time of the year!! But for some people, including myself and my Dad, it can have its ups and downs when it comes to having a birthday near and around the holiday season. I personally share a birthday with my Dad two days before Christmas. Yes, Christmas Eve Eve is our birthday. Here are a few pros and cons for having a birthday near the holidays.

Keep Reading...Show less
Christmas Tree Lights
Pixabay

It is that time of year again. Christmastime. It is one of my favorite seasons for a myriad of reasons. Here are just a few reasons why I love Christmas. This list is in no order of importance.

1. The Christmas decorations

I am that person who will decorate directly after Thanksgiving is over. This year, my roommates and I put the tree up in our apartment before we even left for Thanksgiving break. It is a great stress reliever for me to just sit in my living room and work on the huge amount of work I have before the semester is over.

Keep Reading...Show less
girl with santa hat
Photo by Toa Heftiba on Unsplash

'Tis the season to be jolly folks, and if you're anything like me, then at the stroke of midnight on Halloween your home went from wicked to winter

Keep Reading...Show less
mistake
Project Eve

Mistakes are something we all make, no matter how old we get. Most of the time, the mistakes we made are little and sometimes due to something out of our control. Yet, there are mistakes that are bigger than others. Personally, I have mistakes that I wish I could go back and undo. Here they are:

Keep Reading...Show less
Student Life

5 Things To Do That Are Better Than Writing A Paper

Don't waste your time trying to write that paper when there are so many more interesting things you could be doing.

13297
computer keyboard
Unsplash

Writing a paper is never fun and is rarely rewarding. The writer's block, the page requirement, be specific, but don’t summarize, make sure you fixed any grammatical errors, did you even use spellcheck? and analyze, analyze, analyze.

Papers can be a major pain. They take up so much time and effort that by the end of the process you hate yourself and you hate the professor for making life so difficult. Questions of your existence start roaming in your mind. Am I even cut out for college if I can’t write a single paper? Am I even capable of taking care of myself if I lack the energy to open my laptop and start typing?

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments