It's Time to Start Talking About ARFID | The Odyssey Online
Start writing a post
Health and Wellness

My Eating Disorder Is None Of Your Business, But I’m Going To Tell You About It Anyway

The world may not need to know about me, but they do need to be informed about mental health.

547
My Eating Disorder Is None Of Your Business, But I’m Going To Tell You About It Anyway
Rachael Daudelin

Content warning: eating disorders.

Mental health is a scary, personal topic. I've always been outspoken, but when it came to my eating disorder, it was hard to explain and even harder for others to understand. Throughout most of my life, I hid that part of myself, afraid to try and explain.

Not anymore.

I don't suffer from anorexia or bulimia, but rather, a lesser-known eating disorder known as avoidant-restrictive food intake disorder (ARFID). It was only recently identified as a diagnosis, but it's been around long before being defined in 2013-- I've been showing symptoms as early as age 7. Unlike many other eating disorders, ARFID has nothing to do with body image. Instead, it's feelings of fear and anxiety relating to the food itself or the act of eating. It looks a lot like picky eating, but it goes far beyond just dinner table stubbornness. People with ARFID are restricted to certain "safe foods." Unsafe foods can be an impossible task because of texture, taste, smell, color, food group, and a wide variety of other factors. Even new brands and new recipes of familiar foods aren't automatically safe-- to someone with ARFID, anything new can be anxiety producing.

Learn more about ARFID from eatingdisorder.org, healthline.com, and yourtango.com.

My eating patterns were something that, for many years, I made excuses for when I was asked about them. I told people I was just not hungry or that I'd already eaten. Usually, if I told them the truth (I've never had that/I don't like that, and I'm afraid to try it), I opened myself up to further questions, teasing, or commentary that I didn't ask for. Even once I found out that ARFID was a diagnosis, telling them the truth would, again, just prompt more questions.

The first time I was asked if I had an eating disorder after I knew I had an eating disorder, I was waiting in a line during gym class. The girl behind me picked up my wrist, showed it to her friends, and said to them incredulously: "Whoa, look how small her wrist is!" Then, to me, she said: "Do you have an eating disorder?"

Yeah, one that nobody has really heard of. And if this person felt it was appropriate to grab another girl's arm without permission, chances are she wasn't going to be the easiest person to explain a weird disorder to. I gave her my usual answer, but with a twist:

"Do not touch me, I don't know you! And not that it's any of your business, but no, I don't have an eating disorder. I'm genetically small. But even if I did have an eating disorder, I certainly wouldn't be talking to you about it."

That's paraphrasing since this happened over five years ago, and from what I remember, she was only mildly taken aback that I called her out. I doubt she lost any sleep over it, but this small interaction and many others like it have stuck with me over the years. The person I was five years ago wasn't willing to go off on someone who was rude and ignorant. The person I was five years ago was silently upset, ranting to someone else about it later, but never able to tell the person what they'd done wrong. I don't remember when, but at some point, that changed.

By sophomore year of college, I was completely done with the judgment and rude comments from strangers. While ordering my usual "safe meal" in the dining hall, the server asked me a simple question to confirm what I wanted.

"That's it?"

Yes, I told him. I thanked him and reached for my plate.

He laughed. "That's weird!"

Suddenly, I felt like there was a small fire in me. Who the heck is this guy? I certainly wasn't making his job any harder, and of course, I'd been polite-- why was this any of his business? Who actually says that to someone??

"Yeah," I said flatly. "It's the eating disorder."

(The look on his face was priceless.)

I've evolved. To this day, I wish I could turn back time and call out that girl with all the information I had.

I know more now, I have more strength, and 20-year-old me is a lot more eloquent than 15-year-old me. High School Me desperately wanted people to leave her alone. She wanted a diagnosis, she wanted to get better, and she wanted to feel less tired and sick all the time. Even after I read about ARFID, not enough people knew about it for me to get the help I needed-- so I didn't.

Now, I'm 20-year-old me, who can stand up for herself and show people the effects of their ignorance. I can't go back in time and make people know about ARFID well enough to help me recover. I can't turn back time and (continue to) tell my gym classmate how wrong she was. I can't go back and explain to her that yes, I do have an eating disorder, but here's a better way to talk about it.

You see, it's not anyone's business that I have an eating disorder. But until people know about ARFID, I have to make them aware that there's a disorder to be aware of. Though I definitely fault the girl from my gym class and the guy from the dining hall for being fairly rude, I don't fault them for not knowing about ARFID. That's nobody's fault. So I'm willing to be the person that makes everyone aware. I may not be able to eat like a normal person, but I can write, speak, and think-- and that's enough to educate and help a lot of people.

So now? You have no excuse. Remember ARFID. This is a real disorder, and shaming sufferers is not going to help them get better. It's up to me to spread the word so that my peers with ARFID have a chance of an easier time with ARFID than I did. This week, I get to stand on a stage at TedXTowsonU and speak about ARFID so that nobody else has to wait so long for treatment, and so that people can be aware of and understand ARFID in the same way that they know anxiety and depression.

I'm doing it for 15-year-old me.

Watch me live on Wednesday, November 14, 5:30 p.m. EST
Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
Thoughts While Studying For Finals
StableDiffusion


That time of the semester has arrived once again, finals. The worst week ever. Who thought it was a good idea for all your classes to have exams all in the same week? Definitely not me. Here's 20 thoughts you may have studying for finals.

Keep Reading...Show less
Entertainment

Disney magic for New Year!

The "Happiest Place on Earth" has a lot of characters with some pretty great advice.

5350
Disney magic kingdom castle on new years
StableDiffusion

Disney movies are well known and very popular in today's world. Although many people appreciate the plot and the storyline, not many people appreciate the wisdom these characters possess. Every Disney movie has unique advice that can be applied to everyday life. Here are 11 Disney quotes to help start your New Year off right:

Keep Reading...Show less
Lifestyle

40 Gift Ideas for the Indecisive

It's a time of love, family, memory-making, and gift-giving. But also a time of stressing over the perfect gift.

119550
Christmas gifts around a tree
StableDiffusion

It's officially December. There is less than a month of 2024, and I still feel like yesterday was summer. Now comes the merriest time of the year, the Christmas season.

Everyone has been waiting for this time of year since mid-October (which is way too early, in my opinion) or before. It's a time of love, family, memory-making, and gift-giving. A lot of times when I ask friends and family what they want, I get a lot of "I don't know" or "I don't care."

Keep Reading...Show less
Lifestyle

Bucket List To Live In The Now

Find excitement in your life and start exploring wherever you are right here, right now.

1347
mu bucket list

I was sitting at my cubicle, now that I am an adult, looking at the rain pouring down on the windowsill, bumming on life, wishing for the rain to just stop for a full day.

There are moments where we count down the hours until work is over and how many more days till the weekend, and this many weeks until something exciting. Or something like that? Well, I was bumming because my next day off from work is not until Memorial Day weekend, which is not until the end of May. And since this is my first year out of college being a “real person,” I am totally missing the winter, spring and summer breaks. I am sure all of us have felt this way even if just for a hot minute…

Keep Reading...Show less
Entertainment

11 Ways To Survive Finals As Told By Leslie Knope

Because you know you're going to be stressed out, and Leslie knows exactly how to survive.

973
Everything hurts and I'm dying

So finals are on their way. That's right everybody, finals are about to start.

But hey, don't panic. Start getting your affairs in order and prepare for a week of hell. Here's a few things Leslie Knope wants you to do to make your finals week just a little bit less stressful:

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments