Loving Someone With Autism | The Odyssey Online
Start writing a post
Health and Wellness

Loving Someone With Autism

The good and the bad.

408
Loving Someone With Autism
Pixabay

For a long time, I was just as guilty as anyone else of judging that parent with the child who seemed out of control, thinking, “If that was my child…” That was before I understood Autism, before spectrums, before someone I loved was diagnosed.

Years ago, I worked for the States Department of Aging and Disability. During training, we dedicated two weeks to learn about autism. We studied the spectrum, what they called behaviors and how to react to this. I spent a year and a half working with and caring for men and women on different levels of the spectrum.

I cared for many of them, but they are not who I am talking about. Around the time I left that job, my sister and I noticed my one-year-old nephew Gavin liked to line his toys and shoes in a perfect line, and that he would shy away with interaction with other children. Not a huge deal, kids do that sometimes. But we noticed he had to cover his face and shake his head to fall asleep.

I had a feeling then, but I wanted to think I was overthinking it. I have a tendency to do that.

It took three years to get a diagnosis of autism. More accurately, Mild ASD (Autism Spectrum Disorder) with ADHD. This means he had mild delayed communication skills, and difficulty focusing. He had been in Preschool Programs for Children with Disabilities (PPCD) classes for a year before his actual diagnosis, and just the progress made in class was amazing.

Now, you may wonder how this affects me, he is not my child, I don’t have to live with him daily, I don’t have to experience the meltdowns. My sister is my best friend, she loves my children like her own, and I love hers as my own. Gavin may not be mine but he is still my baby.

I also lived through the phone calls.

People were staring and shaking their heads when Gavin would have a meltdown. Judging without knowing that Gavin doesn’t understand why he can’t have that toy, or there was too much noise in the store and he would have a sensory overload. She had to explain to another stranger that he was autistic and not just spoiled, she would worry about him in class, getting away from his teachers and into traffic.

My sister has two other children who sometime must sacrifice things because they have an autistic brother. What will his future be like? Will he be able to live on his own? Will he be able to work, will he have a relationship? Things that a neurotypical mom takes for granted are everyday worries for a special needs mom.

I hurt for my sister, I hurt for Gavin, who just can’t communicate things the way we can and gets frustrated. I worry about them every day. This is part of why I decided to minor in psychology when I went back to school. I wanted to really understand what autism meant.

Now for the good part. Gavin is a beautiful light, he is the most caring, sweetest child I have ever experienced. His smile is infectious, just as is his excitement. I can’t explain in words how I felt the first time I heard him call me Aunt Lisa.

When he began making sentences, I cried. He progressed so well in PPCD that he could go to first grade as scheduled. Not only this, but he is keeping up with a class full of neurotypical children, and his teachers love him. When Gavin hits a milestone that a neurotypical child hit long before, it is monumental.

When they came to see us for Christmas, he gave his dad directions to get to my house, he even knows the exact address. He confirms it with me every time I see him. He loves traffic signs and knows them better than some adults I know. He loves to tell time, and he loves to come to see me and his cousins.

For those who are not aware of autism and its complications, the Mayo Clinic describes Autism as a condition related to brain development that impacts how a person perceives and socializes with others, causing problems in social interaction and communication. This is on a spectrum. Being low on the spectrum means higher communications skills, and being high on the spectrum means low communications skills as well as other symptoms.

This is not to be confused with being high or low functioning. Functioning describes how well they can do things for themselves. The best way to explain this is with Gavin. His official diagnosis is Mild ASD because he had delayed speech and communication, but he is high functioning because he can do most things for himself.

If you would like to know more about Autism and what you can do to help, Autism Speaks is the official website available to find resources, learn about the research and participate in events. In September, there will be an Autism Speaks Walk in my area (find one in yours) that I plan to attend in support of Gavin, the person I love with autism.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
Featured

15 Mind-Bending Riddles

Hopefully they will make you laugh.

191909
 Ilistrated image of the planet and images of questions
StableDiffusion

I've been super busy lately with school work, studying, etc. Besides the fact that I do nothing but AP chemistry and AP economics, I constantly think of stupid questions that are almost impossible to answer. So, maybe you could answer them for me, and if not then we can both wonder what the answers to these 15 questions could be.

Keep Reading...Show less
Entertainment

Most Epic Aurora Borealis Photos: October 2024

As if May wasn't enough, a truly spectacular Northern Lights show lit up the sky on Oct. 10, 2024

15858
stunning aurora borealis display over a forest of trees and lake
StableDiffusion

From sea to shining sea, the United States was uniquely positioned for an incredible Aurora Borealis display on Thursday, Oct. 10, 2024, going into Friday, Oct. 11.

It was the second time this year after an historic geomagnetic storm in May 2024. Those Northern Lights were visible in Europe and North America, just like this latest rendition.

Keep Reading...Show less
 silhouette of a woman on the beach at sunrise
StableDiffusion

Content warning: This article contains descriptions of suicide/suicidal thoughts.

When you are feeling down, please know that there are many reasons to keep living.

Keep Reading...Show less
Relationships

Power of Love Letters

I don't think I say it enough...

458618
Illistrated image of a letter with 2 red hearts
StableDiffusion

To My Loving Boyfriend,

  • Thank you for all that you do for me
  • Thank you for working through disagreements with me
  • Thank you for always supporting me
  • I appreciate you more than words can express
  • You have helped me grow and become a better person
  • I can't wait to see where life takes us next
  • I promise to cherish every moment with you
  • Thank you for being my best friend and confidante
  • I love you and everything you do

To start off, here's something I don't say nearly enough: thank you. Thank you, thank you, thank you from the bottom of my heart. You do so much for me that I can't even put into words how much I appreciate everything you do - and have done - for me over the course of our relationship so far. While every couple has their fair share of tiffs and disagreements, thank you for getting through all of them with me and making us a better couple at the other end. With any argument, we don't just throw in the towel and say we're done, but we work towards a solution that puts us in a greater place each day. Thank you for always working with me and never giving up on us.

Keep Reading...Show less
Lifestyle

11 Signs You Grew Up In Hauppauge, NY

Because no one ever really leaves.

27027
Map of Hauppauge, New York
Google

Ah, yes, good old Hauppauge. We are that town in the dead center of Long Island that barely anyone knows how to pronounce unless they're from the town itself or live in a nearby area. Hauppauge is home to people of all kinds. We always have new families joining the community but honestly, the majority of the town is filled with people who never leave (high school alumni) and elders who have raised their kids here. Around the town, there are some just some landmarks and places that only the people of Hauppauge will ever understand the importance or even the annoyance of.

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments