Living with Celiac Disease | The Odyssey Online
Start writing a post
Food Drink

Living With Celiac Disease

Kids would put food in my face and tease me about it, they'd tell me that my symptoms weren't real and that I was just faking it for attention; I even had adults tell me this too.

653
Living With Celiac Disease
Abigail Cauthon

At the age of eight, I experienced horrible stomach pain, weakness, and illness. I was doubled over, and I didn't know why I'd felt so horrible. It wasn't the kind of pain you feel when you have the flu, or when you have cramps. It was a different kind of pain, but I knew it wasn't good. My parents didn't know what was wrong with me either. The only thing my dad had suspected was that perhaps I was intolerant to gluten.

For those who don't know, gluten is found in many food items that primarily contain grains or are often high in carbs. This isn't to say that all foods with carbs or grains have gluten, but they oftentimes do. Gluten is a protein within wheat that is the primary ingredient in cake, pizza, and bread. It is even sometimes in food that you would never suspect, like Twizzlers. It's also synonymous with ingredients like monosodium glutamate, malt, barley…etc.

I tell you that to tell you this:
At eight years old, I was told I had celiac disease. Which just means that my body is unable to digest and break down gluten, preventing me from absorbing vital nutrients.

My dad found out later in his life that he was gluten intolerant after many years of breakouts and complications. He had ascertained the idea that maybe I had also carried this gene and that was why I was in so much pain. Each time we digest gluten, our body attacks our small intestine, killing off what is called villi. My body was in so much pain because I was eating gluten.

After taking gluten products completely out of my diet, I felt 100% better. I was no longer in intense pain, I no longer had rashes, and all other symptoms went away. From then on, I had to watch what I ate, as if I was on a life-long diet.

As you can imagine, this was a ton of responsibility for me as an eight-year-old because I now had to constantly check every label there ever was, make sure that the food I was eating at school didn't have any sort of gluten in it, and I was also now a novelty at school. Kids would put food in my face and tease me about it, they'd tell me that my symptoms weren't real and that I was just faking it for attention. I even had adults tell me this too. They thought I was being hypersensitive.

I had to remember everywhere I went that I had to avoid eating gluten. Do you know how hard that is? It's in so many things. When I was young, not many people knew what celiac disease was. There weren't any gluten-free alternatives out there, so I was eating lots of rice, beans, and salad. I had a very limited food palette. I could no longer have the amazing foods I enjoyed like pizza, garlic rolls, cake, or even ravioli. Although it seems odd, ravioli and spaghetti-o's were my favorite then and I was no longer able to have them. It crushed me.

Having celiac disease was hard as a child because when I went to birthday parties, I couldn't eat most of the food they provided. I couldn't enjoy birthday cake or the pizza that most people ordered. I always had to bring my own food and explain why every time. It seems silly, but I often felt left out. Not being 'normal' because of my allergy made me feel like an outcast. You'd think you wouldn't feel like that, but it generated a lot of those negative feelings because I was a burden to feed due to my allergy.

Fast forward 13 years later, I still have to be careful of what I eat. Celiac disease is something I'll never get rid of. It's a part of my DNA, and there's a good chance my kids will also carry the gene and deal with the same issues.

I don't usually tell people I have celiac disease because I can sometimes get away with having trace amounts of gluten and still be mostly okay. But when I accidentally eat gluten, I pay the consequences. There are times when I accidentally eat it and feel like I can't get out of bed because of the stomach pain. I joke that the pain is so horrible that I feel like I'm dying, but it really does feel severe in the moment.

Being gluten intolerant, I spend quite a bit more money on groceries because I have to find gluten-free food and it's way more expensive. Because gluten-free became a fad diet, more places began offering alternatives and it was easier for me to find foods I liked. When I find gluten-free goodies that aren't normally gluten-free in restaurants, you bet my eyes light up! It's exciting but also a relief.

Being gluten-free has oftentimes felt like a curse, but it's also a blessing sometimes.

The upside to this is that researchers are looking into developing a pill that will help those with celiac disease digest gluten easier and/or subside symptoms completely. So hopefully soon, I'll be able to eat the foods I once loved without feeling ill.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
Lifestyle

The Great Christmas Movie Debate

"A Christmas Story" is the star on top of the tree.

155
The Great Christmas Movie Debate
Mental Floss

One staple of the Christmas season is sitting around the television watching a Christmas movie with family and friends. But of the seemingly hundreds of movies, which one is the star on the tree? Some share stories of Santa to children ("Santa Claus Is Coming to Town"), others want to spread the Christmas joy to adults ("It's a Wonderful Life"), and a select few are made to get laughs ("Elf"). All good movies, but merely ornaments on the Christmas tree of the best movies. What tops the tree is a movie that bridges the gap between these three movies, and makes it a great watch for anyone who chooses to watch it. Enter the timeless Christmas classic, "A Christmas Story." Created in 1983, this movie holds the tradition of capturing both young and old eyes for 24 straight hours on its Christmas Day marathon. It gets the most coverage out of all holiday movies, but the sheer amount of times it's on television does not make it the greatest. Why is it,
then? A Christmas Story does not try to tell the tale of a Christmas miracle or use Christmas magic to move the story. What it does do though is tell the real story of Christmas. It is relatable and brings out the unmatched excitement of children on Christmas in everyone who watches. Every one becomes a child again when they watch "A Christmas Story."

Keep Reading...Show less
student thinking about finals in library
StableDiffusion

As this semester wraps up, students can’t help but be stressed about finals. After all, our GPAs depends on these grades! What student isn’t worrying about their finals right now? It’s “goodbye social life, hello library” time from now until the end of finals week.

1. Finals are weeks away, I’m sure I’ll be ready for them when they come.

Keep Reading...Show less
Christmas tree
Librarian Lavender

It's the most wonderful time of the year! Christmas is one of my personal favorite holidays because of the Christmas traditions my family upholds generation after generation. After talking to a few of my friends at college, I realized that a lot of them don't really have "Christmas traditions" in their family, and I want to help change that. Here's a list of Christmas traditions that my family does, and anyone can incorporate into their family as well!

Keep Reading...Show less
Student Life

The 5 Phases Of Finals

May the odds be ever in your favor.

1740
Does anybody know how to study
Gurl.com

It’s here; that time of year when college students turn into preschoolers again. We cry for our mothers, eat everything in sight, and whine when we don’t get our way. It’s finals, the dreaded time of the semester when we all realize we should have been paying attention in class instead of literally doing anything else but that. Everyone has to take them, and yes, unfortunately, they are inevitable. But just because they are here and inevitable does not mean they’re peaches and cream and full of rainbows. Surviving them is a must, and the following five phases are a reality for all majors from business to art, nursing to history.

Keep Reading...Show less
Student Life

How To Prepare For The Library: Finals Edition

10 ways to prepare for finals week—beginning with getting to the library.

3071
How To Prepare For The Library: Finals Edition
Photo by Clay Banks on Unsplash

It’s that time of year again when college students live at the library all week, cramming for tests that they should have started studying for last month. Preparing to spend all day at the library takes much consideration and planning. Use these tips to help get you through the week while spending an excessive amount of time in a building that no one wants to be in.

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments